The cracked Zebra

  Dealing with disappointment is hard for anyone but for the invisible illness crew, it's more complicated than you think. Disappointments happen every day, Some are big and some are small but they are not all created equal. Some disappointments are easy to let go of like missing out on a big sale or having the person in front of you get the last item you were looking forward to. Then some disappointments hit you where it hurts. These are harder to get over or manage because of their personal nature like loosing a loved one or losing an ability.  Most people don't realize how disappointed and hurt we feel being betrayed by our bodies. You have one job body.... do your frikkin job and function already! I hate going to bed at night not knowing what tomorrow will bring. Most people take for granted waking up in the morning feeling refreshed and ready to take on the day. We often feel stiff and sore, and most nights sleep does not come easy. Between the leg cramps and ...

Today we're going to talk a bit about teenagers. If you have one or have ever encountered one (some of you may have been a teen like this. ) I'm sure many of you have had similar or at least equally unpleasant encounters. I love them, but I sure as heck don't always like them!  Let's dive right in...  I was walking into the hospital with my 14-year-old daughter to see her doctor. It was a cane day. And as we were walking my daughter decided to strike up a conversation. That's kind of rare in itself so I got a little excited. However, the words that were about to come out of her mouth were, to say the least, slightly shocking.... The teenage specialty!  She said " Wow mom, you must really like those Mucklucks they cover your AFO's well. You almost look normal. Until you get to the cane. That makes you look more like an 80-year-old woman. Then again your face looks more like you're 20. So then it just looks like you've had a ton of plastic surgery to ...

   there was nothing and from nothing came a light........ Ok, just kidding that is not really how this is gonna go 😂   I'm going to get real about the ins and outs of living with multiple chronic illnesses. Some days are up, some days are down and many days are just in between. All are valid and all are very real. I see you! I believe you! I'm right here with you!    Have you ever felt like you just don't fit in, that the people around you see you and listen to you but don't really SEE YOU or HEAR YOU? The real you, not the superficial "oh yeah I'm fine" you. I'm talking about the real, scarred, beat down, and broken you.... the one you push down deep in your soul never to be seen again if you can help it you.  I feel this way all the time and it is exhausting! I know some of you get it. You are also tired of trying to explain what you deal with on a daily basis without scarring them because then you just have to play it down to make them feel b...