The cracked Zebra

  Day 29 – What To Say To Someone With Chronic Illness We all may have a list of things  not  to say to someone with a chronic illness, but what about things you  should  say?  I'm gonna stop by for a visit. this is one of my favorite things to hear from a friend. I love it when one or two people come to visit me in my home. Home is my happy place. It is where all my stuff is. All the stuff that keeps me healthy and comfortable. I know the seating will be comfortable, I know the food won't make me sick and I know if something did happen I would have whatever I need available when I need it. This reduces all the stress I have from going out. I don't even have to brace up if I don't want to. I can just sit back and relax with a good friend. Now that's the life! _________________________________________________ How can I help you?   This is another phrase I like to hear. I DO NOT like to ask for help. Asking for help was always a sign of weakness growing ...

  Day 28 – 3 Things You’re Grateful For A day of gratitude! Talk about 3 things you’re grateful for. I am a very blessed person. I have so many things in my life that I am thankful for. Is at the absolute top of my list! I have a fantastic husband who works hard at everything he does. He always wants to be the best at everything from being a good husband to a great father, and provider for our family. He even does the little things like emptying the dishwasher and making sure the hot tub is clean and healthy for my therapy. He really is a gem. Then there are my 7 beautiful children. From oldest to youngest there are so many blessings mixed in. Each child is growing each day to be the best human they can be. They are all Kind and thoughtful individuals who truly make this world a better place and I am so very thankful God entrusted them to me for the time he did. Although most of them are off-adulting in the most fantastic ways they will forever be my babies. That probably sums me u...

Day 9 – Life Hacks For EDS & HSD  Life hacks are things that make our lives a bit easier. There are so many life hacks out there for all different things but for EDS there are some that are just a cut above the rest. I have a couple that I'd like to share with you today.  _________________________________________________ Let's start with a medical binder. These are helpful to have to keep all your health information in one place. Make a section in the binder for each type of doctor and keep pamphlets for them preferably in their field of study about how EDS affects those areas in case they have never heard of EDS. For example, eye doctors, Dentists, or cardiologists would all have different issues associated with their different fields. You can also put any records or papers from that specialty in the binder so it is organized in case you need it in the future. Another favorite hack I use is to rest before you need to or pacing.  It is no surpr...