EDS awareness day 8 - Facts about EDS

Day 8 – Fact or Stat About EDS & HSD 

Ehlers-Danlos Syndrome is a tricky little beast to deal with since no two Zebras are alike. Most types of EDS include Joint hypermobility, unstable joints, A high risk of joint dislocations and/or subluxations. Our skin bruises easily, we experience organ prolapse, hernias, and our wounds heal really slowly. 



There are other conditions that are co-morbid (or often associated with EDS) Such as Postural Tachycardia Syndrome (POTS), Mast Cell Activation Syndrome (MCAS), and  Gastroparesis

The cause of EDS is a genetic error that can either be inherited or spontaneous. Each type causes a problem with a different gene. The Gene for hypermobile Ehlers danlos syndrome has not yet been discovered.


There is no treatment for EDS, just treatment to try to control the pain and other symptoms associated with EDS. That is why it is so important to get the word out about the different Ehlers-Danlos syndromes.  Doctors need to stop dismissing us and start finding ways to really make a difference in our lives.

If you have EDS please know you are not alone. There are groups out there on Facebook ready to welcome you in so you can start to feel less alone. 

Together we dazzle! 

Join us and tell us how you learned about EDS we’d love to hear from you.

I see you…

I hear you

And I am so glad you are here 

 

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