EDS Awareness Day 3 - Wear it Wednesday

Day 3 – Wear it Wednesday – Zebra Strong!

For Wear It Wednesday, wear something zebra striped and share how you are Zebra Strong. 

I'm sure one of the first things you see when you look at the EDS awareness ribbon is the Zebra stripes. The Zebra is the symbol for Rare diseases, Not exclusively EDS but most of us EDSers wear our stripes proudly. 

No two Zebras are alike and that is how it is with EDS as well. We all wear stripes, but we all wear them differently.  We have different types, Different experiences, and different symptoms. Although very different, We all have one common goal: We all want the time to come when doctors and Nurses recognize immediately the signs of EDS and HSD. Many patients have to wait a decade or more to get answers. I waited over 3 decades myself. That is way too long!

We are Zebra Strong!


So what does that mean?

Being Zebra Strong means dealing with the daily challenges of living with EDS and HSD.  The dislocations, the subluxations, the pain and discomfort of just being. That in itself is brave! On top of that, we also have to deal with the disappointments of the things we could once do easily that are now challenging. We have to learn to adapt to doing it a new way and if that is not possible we must grieve that loss of ability the same way you grieve any kind of significant loss.

Being Zebra strong is all about digging deep within yourself and pulling up all the strength you have in the face of adversity.

 All of it is exhausting but every day we fight!

Tell us about your fight, we want to hear your story too! Share with us on Facebook

I see you…

I hear you…

And I am so glad you are here ❤️



©Thecrackedzebra 2023. Unauthorized use and or duplication of this material without express and written permission from this site's author is strictly prohibited. Excerpts and links may be used, provided full and clear credit is given to The Cracked Zebra with appropriate and specific direction to the original content.




Comments

Post a Comment

Popular posts from this blog

See something, Say something

Image
  See something...say something... "See something, say something" is a phrase we have all heard. It is an important mantra that encourages people to report any suspicious activities or behaviors that they may observe. It's all about promoting safety and vigilance  in our communities. If you ever notice something that doesn't seem right, whether it is an unattended bag, suspicious behavior, or anything out of the ordinary, don't hesitate to report it to the authorities. They are trained to handle these sorts of situations and determine if further action is needed. This is excellent advice! Unfortunately, it also promotes people being skeptical of one another. Looking at other people thinking they may be up to something, even when they may have had the purest of intentions. Of course, if you see something suspicious say something but what if we could do more with it? I think it's time to change things up a bit. What if See something, say someth...
Read more

Happy new year a couple weeks late

Image
New year, new you... Right? How about maybe we try something . . . a little different this year.  Maybe this year can be the year of self-love.  The year we finally recognize the things we accomplish every day. Even if it is just a day of rest. I don't know about you but I have spent most of my life being told what to do, what to think, how to be....with a body that just wont cooperate. So many rules, so many expectations.... I want this year to be different! This year lets parctice  Here are some suggestions to try to be just a little kinder to yourself this year... 1. Practice self-care! Prioritize activities that promote your physical, mental, and emotional well-being. This can include regular exercise your body can handle, eating as healthy as you can each day, and getting the amount of sleep YOU need. Make sure you are taking time to engage in activities you enjoy and don't steal all your energy. Things that bring you joy and relaxation. 2. Set Boundaries! Learn to s...
Read more

Word Vomit

Image
Today we're going to talk a bit about teenagers. If you have one or have ever encountered one (some of you may have been a teen like this. ) I'm sure many of you have had similar or at least equally unpleasant encounters. I love them, but I sure as heck don't always like them!  Let's dive right in...  I was walking into the hospital with my 14-year-old daughter to see her doctor. It was a cane day. And as we were walking my daughter decided to strike up a conversation. That's kind of rare in itself so I got a little excited. However, the words that were about to come out of her mouth were, to say the least, slightly shocking.... The teenage specialty!  She said " Wow mom, you must really like those Mucklucks they cover your AFO's well. You almost look normal. Until you get to the cane. That makes you look more like an 80-year-old woman. Then again your face looks more like you're 20. So then it just looks like you've had a ton of plastic surgery to ...
Read more