EDS Awareness day 19

Day 19 – Wear #REDS4VEDS

Friday, May 19, 2023, is global #REDS4VEDS Day! A day dedicated to raising awareness of vascular Ehlers-Danlos syndrome (vEDS) and showing support for people living with this condition. To take part, simply wear red, take a selfie, and post it on social media using the hashtag #REDS4VEDS.

What is vEDS?

vEDS is a genetic connective tissue disorder that causes the blood vessels and organs to be fragile and prone to tearing. The complications of vEDS can be life-threatening and include aneurysm, dissection, and rupture of the arteries and rupture of organs. vEDS may also cause a variety of other symptoms, including extensive bruising and spontaneous pneumothorax. vEDS can cause symptoms in many different areas of the body, so people with vEDS may require multiple providers in different specialties to manage their care.

Key aspects of care focus on monitoring and managing arterial and organ fragility. It is recommended that people with vEDS have an emergency plan in place and make lifestyle modifications to minimize the risk of complications. Learn more. 

Find vEDS awareness resources here. 

Join us on our Facebook group and show us your red in support of vEDS. Don't forget to tag  #REDS4VEDS


I see you…

I hear you…

And I am so glad you are here, ❤️

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