EDS Awareness day 4 Shine your light on EDS

Day 4 – Shine a Light on a Type of EDS or HSD

⁠The Light it Up Challenge is an annual May event that asks the community to request their local buildings and monuments be lit up for awareness on May 4! 


I have requested the CN tower in Toronto be lit up Black and white To help get the word out. If you participated in the light-up challenge let us know in the comments where you requested to be lit so we can check it out!

Now let's shine the light on the types of Ehlers-Danlos Syndrome….


As of today, there are 14 known types of EDS you can click to learn more about each type if you like. 


Arthrochalasia EDS (aEDS)
Brittle Cornea Syndrome (BCS)
Cardiac-valvular EDS (cvEDS)
Classical EDS (cEDS)
Classical-like EDS (clEDS)
Dermatosparaxis EDS (dEDS)
Hypermobile EDS (hEDS)
Hypermobility spectrum disorders (HSD)
Kyphoscoliotic EDS (kEDS)
Musculocontractural EDS (mcEDS)
Myopathic EDS (mEDS)
Periodontal EDS (pEDS)
Spondylodysplastic EDS (spEDS)
Vascular Ehlers-Danlos Syndrome (vEDS)

I have The hypermobile type. This is currently the only type they have yet to find the genetic sequence of to confirm the diagnosis. It is also the most common form to be diagnosed. hEDS may be suspected if a person has:

  • Joint hypermobility

  • Joint instability

  • Chronic pain

  • Mild skin hyperextensibility

  • Abnormal scarring

  • Chronic fatigue

  • Gastrointestinal issues

  • Dysautonomia

  • Headaches

  • Mast cell activation diseases

As I said in yesterday's blog it can take decades to get a proper diagnosis. This has to change and that is why I am doing this every day in the month of May to help spread the word.

Join us on Facebook and tell us how you're spreading Awareness! 

I see you…

I hear you…

And I am so glad you’re here ❤️



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