EDS Awareness Day 10

Day 10 – Walk & Roll Wednesday

There are so many Zebras walking around in a fog right now not understanding what is going wrong in their bodies. We need more doctors and scientists looking into Ehlers-Danlos Syndrome. Patients are in great need of proper advice and support. We need doctors to be trained to recognize the signs of EDS so it can be diagnosed earlier to help prevent the deterioration of our bodies from overuse and improper care.

Today the Ehlers-Danlos Society would like us all to commit to walking or rolling to help collectively reach 25,000 miles in the month of May. 25,000 miles is equal to the circumference of the earth symbolizing spreading the word about EDS across the globe.

Whether you can take 25 steps, 25 miles, or 250 miles in May, you’re making a difference for people all around the world affected by EDS and HSD. Why not walk or roll for someone who can’t? Every mile matters my friend. I know you can do it!

You can take part in an activity of your choice – this could be walking or wheeling up and down the length of your garden, going for a walk or run using a treadmill, using a wheelchair or adaptive device, cycling, or walking anywhere you can enjoy. You can take part in a walk or roll today or any day during the month of May.

 We would love to see your photos and videos of your Walk & Roll! Share them with us on our Facebook group. 

The Ehlers Danlos society is challenging us to Raise over $60 during the month of May and they will graciously send you a Limited Edition (and exclusive to fundraisers!) 2023 May Awareness embroidered t-shirt. Because together, we can advance care, access, research, and education!

You can Join the campaign and fellow supporters around the world on Tiltify. 

Learn more by clicking here! 


I see you…

I hear you…

And I am so glad you are here ❤️




©Thecrackedzebra 2023. Unauthorized use and or duplication of this material without express and written permission from this site's author is strictly prohibited. Excerpts and links may be used, provided full and clear credit is given to The Cracked Zebra with appropriate and specific direction to the original content.



Comments

Post a Comment

Popular posts from this blog

See something, Say something

Image
  See something...say something... "See something, say something" is a phrase we have all heard. It is an important mantra that encourages people to report any suspicious activities or behaviors that they may observe. It's all about promoting safety and vigilance  in our communities. If you ever notice something that doesn't seem right, whether it is an unattended bag, suspicious behavior, or anything out of the ordinary, don't hesitate to report it to the authorities. They are trained to handle these sorts of situations and determine if further action is needed. This is excellent advice! Unfortunately, it also promotes people being skeptical of one another. Looking at other people thinking they may be up to something, even when they may have had the purest of intentions. Of course, if you see something suspicious say something but what if we could do more with it? I think it's time to change things up a bit. What if See something, say someth...
Read more

Happy new year a couple weeks late

Image
New year, new you... Right? How about maybe we try something . . . a little different this year.  Maybe this year can be the year of self-love.  The year we finally recognize the things we accomplish every day. Even if it is just a day of rest. I don't know about you but I have spent most of my life being told what to do, what to think, how to be....with a body that just wont cooperate. So many rules, so many expectations.... I want this year to be different! This year lets parctice  Here are some suggestions to try to be just a little kinder to yourself this year... 1. Practice self-care! Prioritize activities that promote your physical, mental, and emotional well-being. This can include regular exercise your body can handle, eating as healthy as you can each day, and getting the amount of sleep YOU need. Make sure you are taking time to engage in activities you enjoy and don't steal all your energy. Things that bring you joy and relaxation. 2. Set Boundaries! Learn to s...
Read more

Word Vomit

Image
Today we're going to talk a bit about teenagers. If you have one or have ever encountered one (some of you may have been a teen like this. ) I'm sure many of you have had similar or at least equally unpleasant encounters. I love them, but I sure as heck don't always like them!  Let's dive right in...  I was walking into the hospital with my 14-year-old daughter to see her doctor. It was a cane day. And as we were walking my daughter decided to strike up a conversation. That's kind of rare in itself so I got a little excited. However, the words that were about to come out of her mouth were, to say the least, slightly shocking.... The teenage specialty!  She said " Wow mom, you must really like those Mucklucks they cover your AFO's well. You almost look normal. Until you get to the cane. That makes you look more like an 80-year-old woman. Then again your face looks more like you're 20. So then it just looks like you've had a ton of plastic surgery to ...
Read more